Myotonia Congenita...a muscular condition that causes me pain, despair and embarrassment.*Its painful when I fall because of it and when my muscles stiffen it is quite often painful until they allow me to move again. Its like when you get a muscle spasm in your back..you just have to wait for it to calm down..well that's what it is like.
*Despair because I want to do so much but my body just wont allow it at times..I dread going any where there are steps, climbing is involved or uneven surfaces. All of these things cause my body the utmost inconvenience and the consequences can be dreadful.
*Embarrassment is just pants!! Getting up from standing, climbing stairs, going to move quickly, getting in and out of my car, talking in front of people to name but a few. My body's movements look awkward and silly, like I'm in slow motion. Ive noticed lately that my speech is impaired at time and things just come out complete 'gobble de goop'...
*The cold has a dreadful effect on my body, its so much stiffer even with taking the Mexitil, my reactions are much slower and my whole body hurts...its awful. I can only describe it like when you have flu, that sort of hurting.
Patience is a virtue when you have Myotonia, just getting out of the chair and walking up the stairs can take me quite some time, then once my body has got going its not so bad...but if I stop then the whole process has to start again.
But you know what.. I wont be beaten...I've had 5 amazing children, I work full time and love to be up my allotment...I have a life and I just build in all the necessary precautions that I can so that I can just get on with the things that I want to do.. But, there's always a BUT, that doesn't mean that I wont fall, I wont slur my words or have difficulty getting up from sitting because I do.
Its a bit like when you want a nice sunny day and you get an over cast, cloudy, grey day...you put up with it because it might get brighter later... x
